"taleS froM the trencheS

National Guard wife blogging about her adventures with three sons and the unexpected joys of Smith-Magenis Syndrome (SMS)
....um, yes. They are tears of joy. Really.

Our Squad

Our Squad

Friday, April 27, 2012

SMileS: Getting Beyond the IQ number

Mental Retardation

That phrase was spelled out on my son's Smith-Magenis Syndrome diagnosis.  At the time, he was 18 months old and that term was very difficult for Charlie and me.

Fast forward two years and Garrett was building a complex system of towers.  A pile of toys, step stools, blankets and pieces of furniture greeted me around every corner.  We hid anything deemed "off limits."  Not your typical chocolate chip cookies kind of hiding.  We hid scotch tape, flour, band-aids and diaper cream.  We even hid bananas which continues to be an ongoing problem. (see here for the Banana story)

One morning, I put some clothes away.  When I returned downstairs, I found the baby gate knocked over and my empty clothes baskets stacked in the kitchen.  It did not take me long to connect the dots.

I walked into the living room and found Garrett standing in a pile of sandwich bags.  He must have heard me (because I was yelling) and he quickly ditched the evidence.

"Framing baby brother"
will never be on the IQ test.

But I can see the genius.

Almost a decade later, this scene makes me laugh.  The baby was still cruising and had yet to take those first steps.  I am certain he was not building towers and knocking over gates.  But, Garrett's decision was so "typical" of a brother.  And the nudge I needed to let words and phrases loosen their hold on me.

I would like to make "SMileS" our friday episodes here at "taleS froM the trencheS."  Do you have a picture or video of your child with special needs that makes you smile? Could you share the story behind it?

Send your photos and a short description (200-300 words) to my e-mail account tmcgrevy@yahoo.com.  If you have a link to video website, we can do that too! 

Can't wait to hear your stories!!

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