Monday, November 17, 2014
World Smith-Magenis Syndrome Awareness Day
Today is the day we celebrate individuals born with Smith-Magenis Syndrome (SMS) and their incredible families.
These families make a coordinated effort to spread SMS awareness in their own corner of the world.
I am pleased to announce that my blog is featured on an international special needs support group, Firefly. This group has started a site, called Firefly Garden, where families can meet in a virtual garden and ask questions, share knowledge of useful products or start campaigns to make social changes.
It is free to join, visit http://community.fireflyfriends.com for details.
It's so hard to get SMS awareness out there! We are very rare (one in 15,000 births according to the PRISMS website) so I am thankful that Firefly Garden is highlighting kids like Garrett today.